You're Not Alone

Helping Families in Ohio Living with TSC
(Tuberous Sclerosis Complex).

DONATE NOW

GET HELP NOW

DONATE NOW

GET HELP NOW

You're Not Alone

Helping Families in Ohio Living with TSC
(Tuberous Sclerosis Complex).

Our Mission

When TSC Costs $15,000+ Per Year, Every Dollar Matters"

Ohio families facing Tuberous Sclerosis Complex shouldn't choose between rent and seizure medication. The Eli TSC Hope Fund provides emergency grants for prescription costs, medical bills, and essential therapies when insurance falls short. Founded by a local family whose son has mild TSC, we've witnessed how this complex genetic disorder impacts families far beyond medical symptoms.

Eli's Story

Diagnosed with TSC at 2 weeks old, Eli’s strength and love for life inspire our mission to support families facing the same journey.

Our Impact

We provide aid, resources, and hope to families affected by TSC—helping them navigate challenges with dignity, support, and connection.

Get Involved

Join our mission! Whether you donate, volunteer, or spread the word, your support directly impacts families coping with TSC.

LEARN MORE

Our Mission

When TSC Costs $15,000+ Per Year, Every Dollar Matters"

Ohio families facing Tuberous Sclerosis Complex shouldn't choose between rent and seizure medication. The Eli TSC Hope Fund provides emergency grants for prescription costs, medical bills, and essential therapies when insurance falls short. Founded by a local family whose son has mild TSC, we've witnessed how this complex genetic disorder impacts families far beyond medical symptoms.

Eli's Story

Diagnosed with TSC at 2 weeks old, Eli’s strength and love for life inspire our mission to support families facing the same journey.

Our Impact

We provide aid, resources, and hope to families affected by TSC—helping them navigate challenges with dignity, support, and connection.

Get Involved

Join our mission! Whether you donate, volunteer, or spread the word, your support directly impacts families coping with TSC.

LEARN MORE

ELI'S STORY

Meet Eli – Why a Cincinnati Family Created the TSC Hope Fund

Eli is a joyful, resilient boy from Cincinnati diagnosed with Tuberous Sclerosis Complex (TSC)—a rare disorder causing benign tumors to grow in vital organs. His diagnosis brought seizures, therapies, surgeries, and uncertainty. But with the support of his family and community, Eli continues to thrive.

His journey revealed a gap: families like his are often financially overwhelmed, emotionally isolated, and unsure where to turn. That’s why the Eli TSC Hope Fund was born—to ensure no family faces TSC alone.

When Eli was diagnosed with mild TSC at age three, our eyes were opened to families facing greater challenges. Now at 10, his journey inspired us to help Cincinnati's TSC community.

The Reality We Discovered: While Eli's case required minimal intervention, we learned that families with severe TSC face crushing financial burdens. Children with refractory epilepsy need multiple medications costing thousands monthly. Parents become full-time caregivers, losing income precisely when medical expenses skyrocket.

ELI'S STORY

Meet Eli – Why a Cincinnati Family Created the TSC Hope Fund

Eli is a joyful, resilient boy from Cincinnati diagnosed with Tuberous Sclerosis Complex (TSC)—a rare disorder causing benign tumors to grow in vital organs. His diagnosis brought seizures, therapies, surgeries, and uncertainty. But with the support of his family and community, Eli continues to thrive.

His journey revealed a gap: families like his are often financially overwhelmed, emotionally isolated, and unsure where to turn. That’s why the Eli TSC Hope Fund was born—to ensure no family faces TSC alone.

When Eli was diagnosed with mild TSC at age three, our eyes were opened to families facing greater challenges. Now at 10, his journey inspired us to help Cincinnati's TSC community.

The Reality We Discovered: While Eli's case required minimal intervention, we learned that families with severe TSC face crushing financial burdens. Children with refractory epilepsy need multiple medications costing thousands monthly. Parents become full-time caregivers, losing income precisely when medical expenses skyrocket.

The Hidden Cost of TSC:
Why Cincinnati Families Need Your Help

The Hidden Cost of TSC:
Why Cincinnati Families
Need Your Help

Crushing Prescription Costs

TSC families spend $14,179 more annually on medications than families with epilepsy alone—often choosing between rent and seizure drugs.

Overwhelming Medical Bills

Beyond prescriptions, TSC patients face $16,838 more in medical service charges yearly, from specialist visits to emergency interventions.

Crushing Prescription Costs

Even with insurance, families pay $1,750-$3,270 annually in co-pays, therapy costs, and medical equipment—money many don't have.

Lost Income from Caregiving

Parents become full-time caregivers, losing household income precisely when medical expenses skyrocket to $15,000+ per year.

Insurance Coverage Gaps

Critical TSC treatments, equipment, and therapies are often denied as "experimental," leaving families to pay thousands out-of-pocket or go without.

Every statistic represents a Cincinnati family making impossible choices. Your donation fills these gaps when insurance falls short.

The Hidden Cost of TSC:
Why Cincinnati Families Need Your Help

The Hidden Cost of TSC:
Why Cincinnati Families
Need Your Help

Crushing Prescription Costs

TSC families spend $14,179 more annually on medications than families with epilepsy alone—often choosing between rent and seizure drugs.

Overwhelming Medical Bills

Beyond prescriptions, TSC patients face $16,838 more in medical service charges yearly, from specialist visits to emergency interventions.

Crushing Prescription Costs

Even with insurance, families pay $1,750-$3,270 annually in co-pays, therapy costs, and medical equipment—money many don't have.

Lost Income from Caregiving

Parents become full-time caregivers, losing household income precisely when medical expenses skyrocket to $15,000+ per year.

Insurance Coverage Gaps

Critical TSC treatments, equipment, and therapies are often denied as "experimental," leaving families to pay thousands out-of-pocket or go without.

Every statistic represents a Cincinnati family making impossible choices. Your donation fills these gaps when insurance falls short.

Be Part of the Hope
It's Easy to Donate

Provides a care package
to a TSC patient

$75

DONATE $75

Gas cards for out-of-state families

$100

DONATE $100

Hotel stays during multi-day medical appointments

$150

DONATE $150

Be Part of the Hope
It's Easy to Donate

Provides a care package
to a TSC patient

$75

DONATE $75

Gas cards for out-of-state families

$100

DONATE $100

Hotel stays during multi-day medical appointments

$150

DONATE $150

What we can do with your help

Reviews

"The Eli TSC Hope Fund helped us afford specialized equipment for our daughter that insurance wouldn't cover. Now she can communicate her needs for the first time."- The Johnson Family