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What is Tuberous Sclerosis Complex (TSC)?
Cincinnati Family Guide

TSC is a lifelong genetic disorder that causes tumors to grow in organs like the brain, heart, and kidneys.
It affects around 1 in 6,000 births in the U.S. Symptoms range from epilepsy and developmental
delays to autism and behavioral health issues. While there's no cure yet, treatments
and support networks make a difference—especially when families have access to proper care and resources.

HOW WE HELP


Every donation goes directly toward relieving financial pressure for families living with TSC in the Cincinnati area.

Emergency Grants:

Pay for medications, co-pays, therapy, travel, rent, or bills during crises.

Bridge Support:

Fill the gap while families await insurance approvals or government aid.

Connection & Advocacy:

We connect families with national programs like NORD, insurers, and nonprofit partners.

“Your $50 could cover an urgent co-pay for seizure medication.”

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Why Insurance Isn't Enough:

Specialized TSC medications often require prior authorization delays

Many therapies are considered "experimental" and denied coverage

Co-pays for multiple specialists add up quickly

Medical equipment like seizure monitors rarely covered

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Why your Donation Matters

TSC Isn’t Just Rare. It’s Expensive.

Families with TSC face an average of $14,800 in excess annual medical costs. Insurance doesn’t always cover what they need

Every dollar you give brings real relief.

Family Stories

Real Families. Real Hope.

We’ve helped families stay in their homes, afford seizure meds, and cover travel for life-saving treatments. Read their stories, share your own, and see the power of community in action.

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You can be their hope

Events & Fundraisers

Join us to raise awareness & funds

From walk-a-thons to family-friendly fundraisers, our events are a chance to show up for TSC families and spread the word.

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Get involved today!

Thank you for learning more about TSC and how you can help! Contact us now to get started!

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Email: info@elitschopefund.org

Phone: 513-xxx-xxxx

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