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What is Tuberous Sclerosis Complex (TSC)?Ohio Family Guide

TSC is a lifelong genetic disorder that causes tumors to grow in organs like the brain, heart, and kidneys. It affects around 1 in 6,000 births in the U.S. Symptoms range from epilepsy and developmental delays to autism and behavioral health issues. While there's no cure yet, treatments and support networks make a difference—especially when families have access to proper care and resources.

What is Tuberous Sclerosis Complex (TSC)?
Cincinnati Family Guide

TSC is a lifelong genetic disorder that causes tumors to grow in organs like the brain, heart, and kidneys. It affects around 1 in 6,000 births in the U.S. Symptoms range from epilepsy and developmental
delays to autism and behavioral health issues. While there's no cure yet, treatments and support networks make a difference—especially when families have access to proper care and resources.

HOW WE HELP


Every donation goes directly toward relieving financial pressure for families living with TSC in the Cincinnati area.

Emergency Grants:

Pay for medications, co-pays, therapy, travel, rent, or bills during crises.

Bridge Support:

Fill the gap while families await insurance approvals or government aid.

Connection & Advocacy:

We connect families with national programs like NORD, insurers, and nonprofit partners.

“Your $50 could cover an urgent co-pay for seizure medication.”

image

Why Insurance Isn't Enough:

Specialized TSC medications often require prior authorization delays

Many therapies are considered "experimental" and denied coverage

Co-pays for multiple specialists add up quickly

Medical equipment like seizure monitors rarely covered

Contact us to elevate your content strategy today.

Why your Donation Matters

TSC Isn’t Just Rare. It’s Expensive.

Families with TSC face an average of $14,800 in excess annual medical costs. Insurance doesn’t always cover what they need

Every dollar you give brings real relief.

Family Stories

Real Families. Real Hope.

We’ve helped families stay in their homes, afford seizure meds, and cover travel for life-saving treatments. Read their stories, share your own, and see the power of community in action.

Family 1

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You can be their hope

Events & Fundraisers

Join us to raise awareness & funds

From walk-a-thons to family-friendly fundraisers, our events are a chance to show up for TSC families and spread the word.

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Date:
Time:
Location:

Placeholder

Date:
Time:
Location:

Get involved today!

Thank you for learning more about TSC and how you can help! Contact us now to get started!

HOW WE HELP

image

Every donation goes directly toward relieving financial pressure for families living with TSC in the Cincinnati area.

Emergency Grants:

Pay for medications, co-pays, therapy, travel, rent, or bills during crises.

Bridge Support:

Fill the gap while families await insurance approvals or government aid.

Connection & Advocacy:

We connect families with national programs like NORD, insurers, and nonprofit partners.

“Your $50 could cover an urgent co-pay for seizure medication.”

Why Insurance Isn't Enough:

Specialized TSC medications often require prior authorization delays

Many therapies are considered "experimental" and denied coverage

Co-pays for multiple specialists add up quickly

Medical equipment like seizure monitors rarely covered

Contact us to elevate your content strategy today.

Why your Donation Matters

TSC Isn’t Just Rare. It’s Expensive.

Families with TSC face an average of $14,800 in excess annual medical costs. Insurance doesn’t always cover what they need

Every dollar you give brings real relief.

Family Stories

Real Families. Real Hope.

We’ve helped families stay in their homes, afford seizure meds, and cover travel for life-saving treatments. Read their stories, share your own, and see the power of community in action.

Family 1

Placeholder

You can be their hope

Events & Fundraisers

Join us to raise awareness & funds

From walk-a-thons to family-friendly fundraisers, our events are a chance to show up for TSC families and spread the word.

Placeholder

Date:
Time:
Location:

Placeholder

Date:
Time:
Location:

Get involved today!

Thank you for learning more about TSC and how you can help! Contact us now to get started!

© 2025 Eli TSC HOPE FUND- All Rights Reserved.

The Eli TSC Hope Fund is a registered 501(c)(3) nonprofit organization. Donations are tax-deductible to the extent allowed by law.

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Follow Us:

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Contact Us:
Address:
PO Box 40143 Cincinnati, OH 45240

Email: info@theelitschopefund.org

Phone: 513–650–6803

© 2025 Eli TSC HOPE FUND- All Rights Reserved.

The Eli TSC Hope Fund is a registered 501(c)(3) nonprofit organization. Donations are tax-deductible to the extent allowed by law.

Privacy Policy | Terms & Conditions

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Contact Us:
Address: PO Box 40143 Cincinnati, OH 45240

Email: info@elitschopefund.org

Phone: 513-650–6803

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Your gift supports families impacted by TSC who are receiving care at the Cincinnati Children’s TSC Clinic and beyond.
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